So far, unfortunately, hospital tests of friends, family and strangers who have generously come forward as potential donors have indicated they’ve not been a match for Paul. The painful fistula procedure he underwent in October as entry point for dialysis needles didn’t work. He now has a line inserted from his neck into his heart instead and has been in four hour dialysis treatments three times a week since the new year.
I continue to send out appeals and advocate wherever I can for an organ donor candidate registry.
Please help spread the word about the necessity for a registry. Contact your government representatives and media. Last month, the kidney story link was to March Kidney Awareness Month. This month, link your stories to April Organ Donation Awareness Month.
One example re contacting media:
Thanks to a call from a family member and a text from a friend, I was made aware that the CBC Ontario Today interview and call-in program was focusing on “How Hard is It to Get a Kidney Transplant?” Perfect! Tweeting first to the show’s twitter address, I managed to get through on air to share my story and refer to the need for a registry and the creation of this petition. Afterwards, my tweet to the petition’s link was retweeted by the program, and I was contacted about being a source for future interviews by other CBC reporters.
Here is the link to that episode’s half hour podcast, which featured donors, recipients and specialists in the renal field:
An example re contacting politicians:
In February, I read about Edmonton, Alberta, Canada MP Ziad Aboultaif tabling, “a private member’s bill calling for a national organ donor registry and a national strategy to bring together Canada’s patchwork of organ donation services.” (See the notice of the tabled Bill in the photo at the top of this post.) Here is that story:
Searching for Aboultaif on Twitter, I sent him a tweet:
.@ziad4manning What can we do 2 support yr tabling of organ donor candidate registry, besides petition: https://www.change.org/p/create-a-living-kidney-donor-candidate-registry …?
Here is his response:
@Gr8Teachrs thanks for mentioning my bill C223 any help is appreciated as I am determined to get it passed.
Please support this petition. Forward its URL to your Government representatives, networks, media and politicians at all levels, adding your story. As always, I recommend you read the comments.
Contact me with any suggestions: