Finally available-and free-much requested Poem for Parents: “Just Let Me (Swear Word) Dance!” Just email me…
Finally available-and free-much requested Poem for Parents: “Just Let Me (Swear Word) Dance!” Just email me…
So far, unfortunately, hospital tests of friends, family and strangers who have generously come forward as potential donors have indicated they’ve not been a match for Paul. The painful fistula procedure he underwent in October as entry point for dialysis needles didn’t work. He now has a line inserted from his neck into his heart instead and has been in four hour dialysis treatments three times a week since the new year.
I continue to send out appeals and advocate wherever I can for an organ donor candidate registry.
Please help spread the word about the necessity for a registry. Contact your government representatives and media. Last month, the kidney story link was to March Kidney Awareness Month. This month, link your stories to April Organ Donation Awareness Month.
One example re contacting media:
Thanks to a call from a family member and a text from a friend, I was made aware that the CBC Ontario Today interview and call-in program was focusing on “How Hard is It to Get a Kidney Transplant?” Perfect! Tweeting first to the show’s twitter address, I managed to get through on air to share my story and refer to the need for a registry and the creation of this petition. Afterwards, my tweet to the petition’s link was retweeted by the program, and I was contacted about being a source for future interviews by other CBC reporters.
Here is the link to that episode’s half hour podcast, which featured donors, recipients and specialists in the renal field:
An example re contacting politicians:
In February, I read about Edmonton, Alberta, Canada MP Ziad Aboultaif tabling, “a private member’s bill calling for a national organ donor registry and a national strategy to bring together Canada’s patchwork of organ donation services.” (See the notice of the tabled Bill in the photo at the top of this post.) Here is that story:
Searching for Aboultaif on Twitter, I sent him a tweet:
.@ziad4manning What can we do 2 support yr tabling of organ donor candidate registry, besides petition: https://www.change.org/p/create-a-living-kidney-donor-candidate-registry …?
Here is his response:
@Gr8Teachrs thanks for mentioning my bill C223 any help is appreciated as I am determined to get it passed.
Please support this petition. Forward its URL to your Government representatives, networks, media and politicians at all levels, adding your story. As always, I recommend you read the comments.
Contact me with any suggestions:
Dear Family, Friends and Colleagues,
On Valentine’s Day in 2011, Paul and I were featured in the National Post newspaper about our love story. The article began, “Who knew when Paul and I met at a cottage closing party on Sept. 30, 1967 we’d be celebrating our 42nd anniversary …a month after our transplant surgeries?”
In early January, 2010 Paul’s kidneys failed as a result of polycystic kidney disease. Since it can be inherited, direct family members were not suitable donors. I volunteered. During the following 11 months Paul underwent dialysis three times a week, five hours each session. Meanwhile, we were each put through a series of tests for compatibility. To our surprise, results indicated my kidneys were an excellent match. On November 25th that year, one of my kidneys was transplanted into Paul—and began working immediately. We thought we were home-free for at least the next 20 years!
Unfortunately, two years ago, our transplanted kidney’s function was compromised by a rare effect of a virus. Since then the outstanding medical staff at the Toronto General Hospital (TGH) has worked diligently to slow down the kidney’s deterioration.
Contrary to wide-spread belief, there is no living kidney donor candidate list in North America.
In Ontario, only when someone goes on dialysis is he or she automatically added to the bottom of a list of recipients who typically have to wait 7–10 years for a kidney from a donor who has died. Up until now, every person whose kidneys fail must find his or her own living kidney donor. Can you imagine being in such a predicament?
I am appealing to you to help us find an extraordinary individual who would be willing to donate a kidney to Paul.
I have never been comfortable asking anyone for anything; however, the time is approaching when my husband may have to go back on dialysis. This would mean being confined three times weekly to a hospital room, attached to a dialysis machine, and restricted to an unhealthy diet. Paul is known throughout the legal and business communities for his professional work and mentorship. For decades, he has volunteered as a leader in community service organizations domestically and internationally. Paul prays to be able to continue his work, and to enjoy the freedom to come and go, our four children, their spouses, grandchildren, relatives, friends and colleagues.
Recently, a successful media appeal for donors was made on behalf of Ottawa Senators owner Eugene Melnyk who needed a liver transplant. Five hundred people came forward. My hope is for a similar response of living kidney donors, not only to benefit Paul, but also other kidney patients in need of a transplant. It’s time to create a living kidney donor candidate registry! Please sign the petition at http://chn.ge/1HM8fBP. Help spread the word… forward this appeal to your network of family, friends, colleagues, associations and organizations.
Outcomes for living kidney donors are excellent. Long term studies show that they continue to live normal lives after donation. Our bodies are able to adjust and function quite well with one kidney – I can attest to that. Living donor evaluation includes many tests to help determine that this is the right decision for the donor from a physical, practical and emotional point of view. All donors are seen by a health care team different from that of the recipient to ensure their needs are specifically addressed. Only those who have passed this rigorous evaluation process are accepted as donors. The well-being of the potential donor is never compromised for the sake of the recipient. To learn more about organ transplants and the TGH team, visit www.uhn.ca/MOT.
Furthermore, TGH Living Donor Kidney Transplant Assessment Coordinator Julie Cissell or I can provide email attachments which include donor manual, consent and health history forms. Potential donors can contact Julie by phone (416-340-4577) or email (Julie.Cissell@uhn.ca). Mention my name or Paul’s. Julie will answer any questions about living donor criteria and testing process.
I am also prepared to share my personal donor experience with any person, group or organization. Just contact me by email at firstname.lastname@example.org. Thanks for your help, which is very much appreciated!
Please sign and support the creation of a living donor candidate registry: chn.ge/1HM8fBP.
* As the holiday season and year end approach, some of us can experience all kinds of heightened emotions. Mixed with the joyful anticipation of festivities and gatherings of friends and family can come sad thoughts about a myriad of disappointments and losses.
In my own experience, embracing my deep emotions and subsequent reactions has resulted in a wide range of creative benefits that include articles, artwork, television shows, podcasts, books and poetry.
I believe that if we identify our feelings and reactions–and if we explore the reasons for them–we can turn our insights into opportunities that fuel raw creativity. As example, without self-editing (at least in first drafts), I fired off “Just Let me F***n Dance!” a few days after taking my teenagers to a holiday concert where, embarrassed, they kept whispering to me to sit down. Reading that particular item of poetry to audiences inspired the most wonderful discussions among participants who were moved to share their own stories. Can you imagine the conversation with my late, beloved 90 year old mother-in-law about the poem’s title? I love to share that, too, because its description has become a piece of comedy on its own.
So, as the holiday season approaches, let’s welcome the depths of our emotions. Let’s mine our reactions and express them. Let’s use our insights as springboards for infinite creativity. Let our feelings fuel the development of music, plays, movies, poetry, dances, performances, paintings, sculptures, pottery and quilts. As I see it, powerful reactions can lead to exceptionally powerful creativity.
Creativity consultant Nellie Jacobs is an artist and author whose revised e-book edition of Grading the Teacher-a best-seller first published by Penguin Books-is now available in most e-reader formats (Kindle: http://www.amazon.com/dp/B00K1OKH4O & Kobo: http://store.kobobooks.com/en-CA/ebook/grading-the-teacher). Website: http://www.nelliejacobs.com
Ever since leaving the formal “job” of elementary school teacher in the 70’s to become a stay-at-home mom, I have developed all kinds of non-traditional creative initiatives.
Some suggestions I practice to keep myself motivated and complete projects may be useful to you:
Imagination will often carry us to worlds that never were.
But without it we go nowhere.
What do you do to keep yourself motivated and complete your projects?
Creativity consultant Nellie Jacobs is a Canadian award-winning artist and best-selling author whose creative initiatives-incorporating all the above suggestions-have been featured for decades by major national, regional and local media across the country. For more about Nellie’s books, artwork, workshops and upcoming events, visit her website at http://www.ignitingimagination.com
I wrote the following post for Creativity Calling, the March 2014 issue of the Creativity Coaching Association (CCA) newsletter:
It’s one thing to be chomping at the bit, ready-finally-to inspire and change the world; it’s quite another to let the world know you exist. These days, with a bit of imagination anyone engaged in the creativity field is in a terrific position to promote themselves and their creative passion. Countless platforms and websites offer simple tools to help you grow your network and achieve your goals.
If you haven’t already done so, for very little time, money and research, you can start a blog or send out an e-newsletter to your network. (If it’s too difficult to maintain regular postings, invite guests to contribute articles, or offer to write your own for other people’s blogs.) Pitch editors of traditional or online publications with an idea for a regular daily, weekly or monthly column. (Have some samples ready for submission). Consider writing and self-publishing a short e-book that might, for instance, offer a step-by-step guide to your insights, experiences, or expertise. Speaking of specialties, prepare a course to teach in-person or online. Initiate and lead supportive groups. Post comments and share links on social media. Conduct interviews of creative individuals on a podcast series-or offer yourself as a well-informed talk show guest.
Creativity has become the buzz word used in ads, articles and media headlines around the world. The trick is to produce a ‘hook’ for a press release that will lead to a feature story. Plan events relating to current events or holidays. Identify a pressing public concern, its creative solution-and then act on it. As example, after internationally renowned creativity specialist Marci Segal read a 2001 newspaper banner that said creativity was in crisis, she was moved to establish World Creativity and Innovation Week April 15 (Leonardo da Vinci’s birthday) to 21. Through networking and media coverage, WCIW is now celebrated in more than 40 countries worldwide!
Here’s an idea to promote creativity AND yourself immediately. Use WCIW as a newsworthy reason to go out into the community to encourage individuals and groups to do something special to celebrate creativity. Approach businesses, schools, recreation centers, clubs, and public institutions to establish partnerships or guide creative projects. For great ideas, explore http://worldcreativity.wordpress.com. Add to the list!
Creativity consultant Nellie Jacobs is a Canadian award-winning artist and best-selling author whose creative initiatives-incorporating all the above suggestions-have been featured for decades by major national, regional and local media across the country. For more about Nellie’s books, artwork, workshops and upcoming events, visit her website at www.nelliejacobs.com.